When Toothbrushing Isn’t a Compliance Issue: Understanding Oral Care Challenges in Children with ASD

When Toothbrushing Isn’t a Compliance Issue: Understanding Oral Care Challenges in Children with ASD

Why is toothbrushing difficult for children with autism?

You've seen it. The child who gags at the sight of a toothbrush. The caregiver who apologizes before the appointment even begins, because brushing at home has been a battle that morning, and the morning before that, and every morning for as long as they can remember. 

These moments are not compliance failures. They are clinical signals, and the dental chair is often the first place they get noticed and named.

For children with autism spectrum disorder (ASD), toothbrushing is not a simple skill. It requires sequencing multiple steps, tolerating unpredictable oral sensations, sustaining attention through a task that offers no visible reward, and managing fine motor demands that many autistic children are still developing. When we layer in sensory processing differences, whether hypersensitivity to textures and vibration or hyposensitivity that blunts awareness of food debris and plaque, the act of brushing becomes a task that demands more executive functioning, motor planning, and emotional regulation than most clinical teams realize. Research suggests that up to 90% of individuals with ASD experience sensory processing differences, which means many autistic children you see in practice are navigating some form of sensory challenge every time a toothbrush enters their mouth.₁

And the challenges compound. Sensory sensitivities, communication difficulties, and behavioral barriers increase the risk of dental caries, periodontal disease, bruxism, and other oral health complications in children with ASD. A hypersensitive gag reflex, so easy to accommodate and move past, is worth pausing on. It can signal low oral tone, poor oral control, or habitual mouthbreathing, all of which respond to myofunctional therapy when identified early. Research has found that as few as 50% of children with ASD brush their teeth the recommended twice per day, and up to 61% of parents report that toothbrushing is difficult.₂

Here's what often gets missed in the operatory: the caregiver sitting in the corner of the room is not failing at oral hygiene instruction. They are managing a life of relentless, layered demands, behavior plans, IEP meetings, therapy schedules, emotional regulation, meltdowns, and daily living skills, and toothbrushing has been deprioritized, not from lack of knowledge but from necessary survival- level triage. A nationally representative study found that the odds of developing anxiety or depression were nearly three times higher for mothers of children with developmental disabilities. When an educator attended a training on autism and oral care, she said afterward: "I'll keep in mind that the parent is struggling too, before I download all of my recommendations." That reframe matters. These families aren't looking for more information about cavities or gum disease. Their emotional drivers are relief, their child's independence, fewer daily battles, and the feeling of being understood by the professionals in their lives.

This is the context in which your clinical recommendations must operate. Not a modified version of standard care, a fundamentally different approach, built around observation, environmental customization, active caregiver engagement, and the recognition that this family may only have capacity for one or two changes at a time.

A scoping review identified five major barriers to oral health care for autistic individuals: challenges accessing appropriate care, negative past experiences, parental perceptions of ASD's impact, clinician bias, and gaps in clinician education.Children with ASD are often scheduled for dental appointments like their neurotypical peers, when their needs are typically complex and require personalized approaches.₅

Try This: Four Adjustments for Your Next Appointment with an Autistic Patient

At intake: Add a screener question: "Does your child have sensory sensitivities, motor
sensitivities, or do they resist toothbrushing?" That single flag changes how you prepare the room and the conversation. It also signals to the caregiver that you understand their reality before they've had to explain it.

During the exam: Connect what you're seeing clinically, plaque accumulation, gingival
inflammation, and enamel defects, directly to the home care challenge. Frame it as a clinical observation, not a correction. Say "this pattern is consistent with what we see when brushing is difficult" rather than "you need to brush more."

When making recommendations: Respect the family's capacity. These caregivers are
managing competing demands that most of us don't see. Rather than listing five things to change, identify the single most impactful adjustment and frame it as achievable. If oral care hasn't been prioritized, it's not because the caregiver doesn't care; it's because it hasn't felt urgent compared to behavioral crises, school challenges, and emotional safety.

When referring to or recommending tools: Think beyond the dental silo. Incorporating
toothbrushing practice with a speech-language therapist, occupational therapist, or behavior analyst can be helpful. Behavior therapists may spend 1–30 hours per week with a single client, and their recommendations carry enormous trust with families. Building those interprofessional connections positions your practice as part of a team rather than an isolated appointment.

 

REFERENCES

1. Crasta, J. E., Salzinger, E., Lin, M. H., Gavin, W. J., & Davies, P. L. (2020). Sensory processing and attention profiles among children with sensory processing disorders and autism spectrum disorders. Frontiers in integrative Neuroscience, 14, 22.

2. Como, D. H., Stein Duker, L. I., Polido, J. C., & Cermak, S. A. (2021). Oral health and autism spectrum disorders: a unique collaboration between dentistry and occupational therapy. International journal of environmental research and public health, 18(1), 135.

3. Hoyle, J. N., Laditka, J. N., & Laditka, S. B. (2021). Mental health risks of parents of children with developmental disabilities: A nationally representative study in the United States. Disability and Health Journal, 14(2), 101020.

4. Jones, J., Roberts, E., Cockrell, D., Higgins, D., & Sharma, D. (2024, January). Barriers to oral health care for autistic individuals—a scoping review. In Healthcare (Vol. 12, No. 1, p. 103). MDPI.

5. Zerman, N., Zotti, F., Chirumbolo, S., Zangani, A., Mauro, G., & Zoccante, L. (2022). Insights on dental care management and prevention in children with autism spectrum disorder (ASD). What is new?. Frontiers in oral health, 3, 998831.
6. Harvard Health. "Making visits to the dentist easier for people with autism spectrum disorder." 2021. (harvard.edu) Available at:  https://www.health.harvard.edu/blog/makingvisits-to-the-dentist-easier-for-people-with-autism-spectrum-disorder-202106292513

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About the Authors 

Rachel Miller, RDH
Editor in Chief

Rachel lives in Grand Haven, Michigan, with her family. She is a clinical affairs strategist and dental innovation leader who has spent her 30-year dental career translating complex science into meaningful impact for clinicians, patients, and the companies bold enough to reimagine the standard of care.
A published author in both peer-reviewed and professional outlets, she specializes in KOL ecosystem development, clinical validation, and bridging what science supports with what the market needs to hear. She brings the same conviction and standards to every page of this newsletter.


Kaci Roberts, MBA, RDH
Director of Content & Events

Kaci lives in Tulsa, Oklahoma, and is a proud mom of two energetic boys. She has been a Registered Dental Hygienist for 13 years and earned her MBA with a concentration in Marketing.
She specializes in content creation, event planning, dental network growth, and strategic brand development across multiple industries. Her experience includes leading ambassador programs, coordinating national events, and building marketing initiatives that strengthen community engagement and elevate brand visibility.